According to the Journal of Medicine, celiac disease is one of the most common lifelong disorders in both Europe and the United States.
But how can that be? We have all heard that about 1% of the population (approximately two million people) has celiac disease so how could celiac disease be one of the most common lifelong disorders? Does that make sense to you?
I think it is this statistic that we have failed to talk about and that is 83% of Americans who have celiac disease are undiagnosed or misdiagnosed with other conditions.
And, research estimates that 18 million Americans or 6 times the number of celiacs, have non-celiac gluten sensitivity.
So my question to you is… Are you willing to bet your life that you are not part of that 83% or that the diagnosis that you do have is the correct one?
For me, this was a huge eye opener and was one of the main catalysts that changed the way I viewed my health. Because I lived it first hand, I was misdiagnosed with with everything from IBS to Crohn's Disease to Chronic Fatigue to Rheumatoid Arthritis, to a non-functioning Thyroid and I could go on and on. And, none of the doctors had any answers for me but more testing to try and figure out what was going on in my body. How about you? Have you been diagnosed with a condition that just doesn’t feel right? The just doesn’t make sense to you? Have you been misdiagnosed?
The real challenge with celiac disease is that there are no specific set of symptoms that one has. Symptoms vary for individual to individual; therefore, it can be very difficult to diagnose. An additional diagnostic challenge with celiac disease is that many doctors are not familiar with celiac disease and rarely think to look for it. Sure this has changed more recently, but many doctors still don’t really understand how this disease works because quite frankly it was a barely a chapter they read in medical school. They are no drugs which are currently associated with celiac disease and unfortunately the drug industry has a huge influence on what doctors are taught. I know that’s a crappy thought and for many of us and a scary thought for others, but it certainly explains why doctors can’t seem to put the pieces of our health together... So let me repeat that statistic 83% of Americans who have celiac disease are undiagnosed or misdiagnosed with other conditions. Now doesn’t that seem to make more sense, now?
The good news, I guess is that there are several pharmaceutical companies trying to work on a medicine for celiacs so this disease will be studied more.
The real problem is there will NEVER be a drug that will truly help celiacs and that will reverse and heal the intestinal damage that has happened, that will only come from a lifelong commitment to not eating gluten.
Sure a medication may help with cross-contamination but NEVER healing and unfortunately this will lead to so much more confusion about this disease. Pop this pill and you’ll be fine, yeah NEVER going to happen!
It will only further mask your symptoms and most likely cause more damage and will make it even more difficult for doctors to find the root cause of your pain, if they ever do! And, what about the additional complications that will come from the repeated damage that most doctors can’t put together now, they will certainly miss it and this will absolutely make it harder to connect the dots to your health and I haven’t even talked about what will happened to your body when you think it is safe to eat gluten because of some pill and you continually do intestinal damage.
It’s time to really understand that your health is your responsibility and not your doctors and certainly not the pharmaceutical industries. What you chose to put in your mouth every day will determine whether you teach your body to stop attacking itself and to eventually heal, that can never come from yet another band-aid or pill you chose to take because you are too busy prioritize your health.
Here are a list of the most common complaints and pain that easily get dismissed as stress, just my system, this is how it has always been. These pains are truly your body trying to talk to you and tell you that something is not right, that something is not working properly in your body and the challenge comes because many of us pop a pill now to quite down these messages and we never get to the root cause of why you are having these issues to begin with.
It's up to us to truly understand our disease and to change our mentality, this is a lifelong disease and will ALWAYS BE!
Should you want to want to learn more about celiac disease and non-celiac gluten sensitivity feel free to check out my book Gluten Free Guide to a Healthy-Do-Over it’s full of goodies, secrets and tips on how to live your best life when gluten is poison to your body.
* Here’s my little disclaimer, I’m not a doctor, researcher, immunologist, just someone deeply concerned and trying to help as many peeps as I can make conscious, good, healthy choices for their health and their bodies when living life with gluten challenges. I have not been compensated or obligated to write this article, and as always, all thoughts and opinions are honest and my own!